Young Person’s Advisory Group – Online Toolkit

Monday 19 April 2021

The NIHR Generation R Alliance as well as members of the European Young Person’s Advisory Group Network (eYPAGnet) and Young Person’s Advisory Groups (YPAGs) have produced an online toolkit.

Setting up and organising a YPAG can be challenging and time-consuming. Ultimately, it is rewarding and often fun as no meeting or group is ever the same! It is a huge learning experience for everyone involved.

The toolkit is designed to take you through each part of the process of setting up a YPAG, and is split into four sections recommended by our users: understanding why it is important; getting started; delivering a meeting; evaluating the work, and the impact a YPAG can have on both the participants themselves and on child health research.

GenerationR consists of 17 Young People’s Advisory Groups (YPAGs), based around the UK. The YPAGs meet regularly to learn about health research and discuss how to make it work better for young people. GenerationR has enabled hundreds of young people to have a voice in research design and delivery both nationally and internationally. GenerationR is funded by the National Institute for Health Research.

NIHR CYP MedTech’s PPI Lead, Jen Preston, set up the first ever NIHR GenerationR Young Person’s Advisory Group (YPAG) in 2006 and currently co-ordinates the GenerationR Alliance.