We aim to include children, young people, and families at every stage of the innovation pathway
We believe that patient and public involvement and engagement (PPIE) is fundamental to the successful development and delivery of technologies for child health. The involvement of children, young people, and their families ensures that technology is developed for and with the user, adopted more rapidly, and better accepted into clinical practice.
NIHR CYP MedTech is therefore driven by the views and opinions of children, young people, and families. Our ethos is to ensure that children, young people, families are involved at every stage of the innovation pathway.
NIHR CYP MedTech has experience with and access to patient groups through patient organisations, charities, specialist networks, and PPIE groups within institutions such as the Royal College of Paediatrics and Child Health.
For 13 years, Jenny’s main role has been to develop and implement a strategy for involving children, young people, parents and carers in all aspects of health research to ensure the inclusion of a lay perspective in the design and delivery of paediatric research.
Jenny Preston set up and currently co-ordinates GenerationR.
GenerationR consists of many Young People’s Advisory Groups (YPAGs), based around the UK. The YPAGs meet regularly to learn about clinical and other health related research and discuss how to make it work better for young people.
GenerationR has enabled hundreds of young people to have a voice in research design and delivery both nationally and internationally.
GenerationR is funded by the National Institute for Health Research.