THEME: TRANSITION

Co-Leads: Dr Helena Gleeson & Dr Priya Narula

ABOUT

TRANSITION

In healthcare, we use the word transition to describe the process of preparing, planning and moving from children’s to adult services.

The transfer of health care for children and young people into adult services can often be difficult. In many cases, the health needs of young people will have been met by the same people who have looked after them for as long as the child or young person can remember.

As they reach adulthood they ‘transition’ to an adult healthcare environment they may be faced with having to consult with several different health teams, therapy teams and adult social care services. This transitional time can often be hard for those living it especially as the more complex the needs of the child or young person, the more complex the transfer of care can be.

TECHNOLOGY FOR TRANSITION

Transition is our cross cutting theme, and will ensure that young people are directly involved in the development of technology to support transition from paediatric to adult care in accordance with the National Institute for Health and Care Excellence (NICE) transition guidelines [QS 140].

Technology for transition is not widely available, despite there being clear unmet clinical needs that could be addressed with technological solutions.

The transition theme will focus on developing technology to:

  • Support learning and education: Young people with long-term conditions may have lived with their condition for many years, but the responsibility for caring for their condition often falls to their parents or guardians. Adult health services expect young people to independently manage their conditions, and therefore young people often require additional learning and education as they prepare to move to adult services.
  • Provide up to date data transmission: Young people with long-term conditions may have their conditions managed by multiple specialities in multiple locations. In order to care effectively for these young people and co-ordinate their move to adult services, clinical teams need accurate and up to date clinical information.
  • Support remote consultations and self-management: Young people become increasingly empowered to manage their own condition as they prepare to move to adult services. Moreover, young people with long-term conditions often have to travel long distances to specialist centres. Technology is needed to enable young people to communicate remotely with their health care team and learn about their condition independently.

THEME LEADS

Dr Helena Gleeson

Dr Helena Gleeson is a Consultant Endocrinologist at Queen Elizabeth Hospital, Birmingham.

Helena has been at the forefront of the national work on Transition in the UK. She worked closely with the National Clinical Director for Transition on NHS England service specifications for transition. Helena was a member of the NICE Guidance Development Group and NICE Quality Standards Advisory Committee for Transition.

Helena chairs the RCP steering group for adolescents and young adults. Helena is also a member of the Advisory Council for the Association of Young People’s Health which leads the Young People’s Health Partnership, a seven strong consortium of organisations working to raise the profile of young people’s health with the Department of Health, Public Health England, and NHS England as strategic partners.

Dr Priya Narula

Dr Priya Narula is a Consultant Paediatric Gastroenterologist and overall transition lead at Sheffield Children’s Hospital.

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